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Timothy L. Vollmer, MD
Department of Neurology
University of Colorado Health Sciences Center Professor

Co-Director of the RMMSC at Anschutz Medical Center

Medical Director-Rocky Mountain MS Center
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Brian R. Apatoff, MD, PhD
Multiple Sclerosis Institute
Center for Neurological Disorders

Associate Professor Neurology and Neuroscience,

Weill Medical College of Cornell University

Clinical Attending in Neurology,
New York-Presbyterian Hospital
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Timothy L. Vollmer M.D.
Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
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Wednesday

 

Mary Tunstall, Guest Columnist: "MY COLUMN IS ABOUT MY YEARS AS A LAB RAT FOR COPAXONE & TEVA PHARMACEUTICALS"


I want to share my experiences as a Lab Rat with Copaxone and Teva. I was diagnosed in 2006. I was found to of had MS since early childhood. I had lost all sensation from the neck down. I was being told I might end up a quadriplegic.

Teva was excited to find me. They were starting a clinical trial for Copaxone at double the dose. It was to be a 2 year study.

Being a lab rat there were times I had to do 66 laps around a track which was extremely difficult for me since just going to the restroom and back to bed was a struggle. I really did 66 laps had no choice..then they would do an EKG right after!  I think they were testing to see how Copaxone at double the dose affected your heart.
For me copaxone did affect mine. I had to be put on blood pressure meds because mine would go too low irritating that they only tell you about the immediate effects and not rare or unusual ones.

There were so many things and tests I would go through. Before it ended I donated my DNA to science. I did not know DNA is something that can be shared to researchers everywhere I didn't care anything to help find a cure for MS. It was an amazing experience to try to be part of the solution!


B12 & vitamin D is mandatory for all of us make sure your doctor checks your levels from time to time. Along the way I started on Copaxone using glass syringes no autoinjector in the TEVA study. I was so scared that first injection had to practice on an orange then an easer don't laugh. Later...Making the transition after the study is when I discovered the autoinjector problem.

With Copaxone because of the type of medication it is you have to inject in correct spots. With the autoinjector I would encounter those lumps and bumps in the study I never did. So I went back to manual no more lumps or bumps.

Manual your body let's you know before pushing that plunger that it is a mistake and gradually you learn what areas not to go near every body's body is different.

My other tip of the day because I do love and genuinely care about all of you is to sign up to get alerts regarding any and all medications you have been prescribed FDA notifies you by email if there have been any adverse events you should be aware of for updates go here be sure to check out rare side effects as well drugs.com and http://www.fda.gov/Safety/MedWatch/ucm228488.htm and to check out clinical trials in your area or type of MS and any information they may share about it afterwards if they choose go here http://clinicaltrials.gov/ct2/results?term=multiple+sclerosis&Search=Search

Blessings to all of our angels Mr Stan!

I love you the mostest too by the way Stan!